Telstra

Championing Health - Telstra Best of Business Awards

Living With a Progressive Illness? Plan Ahead on Your Terms.

As your health and care needs change, keep control of what matters. Organise treatment preferences, advance care directives, medical details, important documents and messages for loved ones. Update and share your wishes as life changes.

Start Your Free Care Plan
Evaheld Free Forever, No Card trust badge for life stages degenerative illness planningFree Forever, No CardEvaheld Update Wishes Anytime trust badge for life stages degenerative illness planningUpdate Wishes AnytimeEvaheld Share With Trusted People trust badge for life stages degenerative illness planningShare With Trusted People
YOUR PROGRESSIVE CARE VAULT

Your Care. Your Choices. Every Stage.

Evaheld Evaheld QR Emergency Access Card for life stages degenerative illness planning
Plans that can change with you.

Planning Ahead

Degenerative Illness Planning for Care Wishes, Documents and Family Guidance

For people searching for progressive illness planning, advance care planning or degenerative illness checklist, this pathway captures care wishes, family guidance, decision-makers, documents and preferences while choices can still be explained clearly.

Planning Ahead

Plan Ahead for Degenerative Illness

Degenerative Illness

Record the values, care wishes, decision-makers, documents and family guidance that should remain clear as a progressive or degenerative illness changes what you can manage later.

  • Plan Before Needs Change

  • Explain Care Preferences Clearly

  • Prepare Family Guidance Early

Founding Family Offer

Two lifetime vaults.
One lasting family legacy.

Two private Premium Lifetime Vaults for any two family members—independently owned and controlled, with shared Rooms for the stories, memories and important information that belong together as a lasting family legacy.

$197One-Off · No Recurring Subscription
$98.50 per parent during the founding offerFuture Pair Price $599
Story & LegacyStories, voice, video, letters and future messages
Health & CareCare wishes, emergency context and decision-makers
Estate PlanningWills, assets, digital legacy and executor guidance
Unlimited private and shared roomsUnlimited content and requestsFree Vaults for loved onesEstate Planning ChecklistAdvance Care PlanningWrite a Life Story BookVoice, video and uploadsFuture Milestone Scheduling
Secure your family legacy for $197

One-off payment. No recurring subscription.

Buying as a gift? Send it today or deliver it on a milestone
5/5Trusted & Secure
One-off paymentNo Recurring Subscription
10,000+ familiesSecure their legacy with Evaheld
60-day money-back guaranteeNo questions asked

PREPARATION THAT CAN CHANGE WITH YOUR CONDITION

Plan for Progressive Illness: Advance Care Wishes & Family Records

Your storyYour wishesYour essentials

Your pace. Your care choices. Your continuity.

Progressive illness can change treatment choices, communication methods and practical support needs. Evaheld helps you record what's important now, organise contacts and directives, and update selected information over time—without demanding that you finish an entire plan on a difficult day.

01

Your life, not only your condition

Story & Legacy

Preserve personal expression in the formats that work today.

Voice, video, writing and photographs offer different ways to express experience, relationships and priorities. You decide which format works for you today.

200+ guided ways to preserve a lifetime

Life stories, memoirs & family history

Describe parts of life that define you · Capture personal achievements and relationships · Explain what you most want others to remember

  • Describe parts of life that define you
  • Capture personal achievements and relationships
  • Explain what you most want others to remember

Videos, voice, photos & memories

Record audio while speaking feels easier · Save photos with short personal context · Build stories in small manageable sessions

  • Record audio while speaking feels easier
  • Save photos with short personal context
  • Build stories in small manageable sessions

Legacy letters & future messages

Write letters without a long writing project · Leave messages for meaningful family occasions · Record thoughts for future milestones

  • Write letters without a long writing project
  • Leave messages for meaningful family occasions
  • Record thoughts for future milestones

Values, traditions & remembrance

Document sources of comfort and resilience · Preserve faith, culture and family routines · Note remembrance wishes if appropriate

  • Document sources of comfort and resilience
  • Preserve faith, culture and family routines
  • Note remembrance wishes if appropriate
02

Adaptive care planning

Advance Care Planning & QR Emergency Card

Keep treatment and support wishes relevant as needs shift.

Store directives, preferences and relevant medical contacts; maintain selected QR emergency details and review information as treatments, equipment and communication methods change.

14 ways to organise care wishes

Advance care planning & directives

Record goals for present and future treatment · Prepare an advance directive with appropriate advice · Describe decisions around interventions and support

  • Record goals for present and future treatment
  • Prepare an advance directive with appropriate advice
  • Describe decisions around interventions and support

QR Emergency Access

Choose crucial alerts for emergency QR access · Update medications and allergy records · List contacts for urgent changes in care

  • Choose crucial alerts for emergency QR access
  • Update medications and allergy records
  • List contacts for urgent changes in care

Decision-makers & care team

Identify appointed healthcare representatives · Organise multidisciplinary specialist contacts · Share chosen care notes with family carers

  • Identify appointed healthcare representatives
  • Organise multidisciplinary specialist contacts
  • Share chosen care notes with family carers

End-of-life, care & personal wishes

Document mobility and assistive communication needs · Record preferred environments and personal comforts · Review records after changes in function or treatment

  • Document mobility and assistive communication needs
  • Record preferred environments and personal comforts
  • Review records after changes in function or treatment
03

Practical continuity as capacity changes

Estate Planning

Prepare practical continuity before tasks become harder.

Family and professional contacts, estate instruments, accounts and household instructions can be recorded gradually and shared with appropriate authorisation.

23 ways to organise essential records

Wills, powers & legal documents

Locate wills and existing legal powers · Record future representation arrangements · Keep trusted solicitors and advisers listed

  • Locate wills and existing legal powers
  • Record future representation arrangements
  • Keep trusted solicitors and advisers listed

Money, property, super & insurance

Identify funding and insurance contacts · Store relevant support benefit information · Organise property and finance record locations

  • Identify funding and insurance contacts
  • Store relevant support benefit information
  • Organise property and finance record locations

Important documents & everyday life

Save IDs and essential supporting documents · Document accessibility and home support suppliers · List recurring services and practical tasks

  • Save IDs and essential supporting documents
  • Document accessibility and home support suppliers
  • List recurring services and practical tasks

Digital legacy, Password Manager & final wishes

Protect passwords and access credentials · Explain locations of important online accounts · Record personal final arrangements when ready

  • Protect passwords and access credentials
  • Explain locations of important online accounts
  • Record personal final arrangements when ready

Take one useful action while you have the time and energy.

Start with a medical contact, personal value or instruction that will make tomorrow easier.

Start Your Free Vault
Plan at your paceMultiple recording formatsChoose who sees what

PLANNING AROUND CHANGING NEEDS

Make your wishes easier to carry forward as your needs change.

A progressive condition may change how you move, communicate and make treatment decisions. Evaheld helps you record what matters in the format that works now, organise relevant care contacts and revisit records without finishing everything in one sitting.

01

Choose a manageable way to express yourself

Begin with a preference, a written note or an important contact. Other media options depend on your plan and what feels comfortable to use.

02

Build an adaptable care reference

Keep existing directives, medical contacts, medicines and accessibility needs organised as treatment and daily support requirements evolve.

03

Your wishes can stay understandable as needs evolve

If treatments, communication methods or daily support change, you can revise the relevant details instead of starting over. Selected family members or carers can see the information you choose, helping your preferences remain clearer across care transitions while preserving your privacy.

Start Your Adaptive Care Plan
Work at your own paceRecord changing needsOwner-controlled access
PREPARE FOR CHANGING NEEDS

Keep important care details clear
as needs change.

Organise wishes, health information, care preferences and trusted contacts in one place that can be updated alongside the person and their care.

START WITH TODAY'S NEEDS

“What information would make tomorrow’s care feel easier to manage?”

CARE GUIDANCE THAT CAN GROW WITH YOU.
THEIR VOICE

The voice you know by heart.

Give them a way to preserve their familiar voice, favourite stories and little pieces of wisdom for those they love.

REAL FAMILIES. REAL EXPERIENCES.

See what changes when everything that matters has a place.

From preserving stories and future messages to documenting care wishes and important information, families share how Evaheld makes it easier to begin, stay connected and leave something meaningful behind.

★★★★★5/5Verified Google reviews

Family story

"Your legacy: A gift that lasts forever"

See how families use Evaheld to send meaningful messages, preserve memories and create something their loved ones can return to — and add to — over time.

Partner recognition

You're In Safe Hands

✦Awards & recognition
Winner

University of Sydney Genesis Startup Competition 2022

Recognised for innovation in legacy preservation and advance care planning.
Winner

Evaheld wins APAC Insider Business Awards 2024

Most Innovative Memorialisation & Care Planning Business 2024 — Social Impact Startup of the Year 2024
Corporate Vision

Evaheld wins Australian Enterprise Awards 2025

Innovation & Advance Care Planning Company 2025 — Service Excellence 2025
Winner

Evaheld wins APAC Insider Business Awards 2025

Most Compassionate Legacy Planning CEO 2025 — Michelle Gomes
Championing Health State Finalist

Telstra Best of Business Awards 2025

Recognised for innovation in healthcare technology and legacy preservation.
01

Why is early planning crucial after a degenerative illness diagnosis?

Degenerative illness · Early planning · Capacity
+
Early planning after degenerative illness diagnosis is critical because progressive conditions gradually erode capacity for decision-making, legal documents require mental competence to execute, early stages allow expressing wishes whilst still able, planning reduces family burden and uncertainty, organised affairs enable focusing on quality time rather than crisis management, and advanced planning ensures your voice guides care even when you cannot communicate—making the difficult period immediately following diagnosis the optimal planning window.
Read full answer: why is early planning crucial after a degenerative illness diagnosis?
02

What essential documents do i need after a degenerative illness diagnosis?

Documents · Powers of attorney · Advance directives
+
Essential documents include updated will with asset distribution and executor appointment, lasting power of attorney for financial management during incapacity, healthcare power of attorney designating medical decision-maker, advance healthcare directive specifying treatment preferences, living will addressing life support and end-of-life care, POLST or similar medical orders for current health status, guardianship nominations if minor children, and comprehensive written wishes about care, placement, and quality of life—all executed whilst you possess clear legal capacity.
Read full answer: what essential documents do i need after a degenerative illness diagnosis?
03

How do i create a comprehensive care plan for progressive illness?

Care planning · Home care · Medical coordination
+
Comprehensive care planning involves documenting current and projected care needs across disease stages, researching and selecting appropriate care providers, planning home modifications for accessibility, coordinating medical specialist team, establishing family caregiving roles and schedules, researching facility options for potential future placement, arranging respite care preventing caregiver burnout, integrating palliative care early focusing on quality of life, planning communication methods as speech ability changes, and regularly reviewing and updating plan as disease progresses—creating proactive roadmap rather than crisis-driven reactive responses.
Read full answer: how do i create a comprehensive care plan for progressive illness?
04

How do i maintain quality of life and meaning despite progressive illness?

Quality of life · Meaning · Purpose
+
Maintaining quality of life requires focusing on remaining abilities rather than losses, adapting activities and hobbies to changing capacity, prioritising relationships and meaningful connections, pursuing bucket list experiences whilst still able, finding new purpose through advocacy or helping others, aggressive symptom management enabling comfort and function, spiritual or philosophical exploration about meaning and mortality, documenting legacy and sharing wisdom, celebrating small joys and victories, and accepting necessary help whilst maintaining maximum possible autonomy—creating meaningful life despite progressive limitation.
Read full answer: how do i maintain quality of life and meaning despite progressive illness?
05

How do i support family caregivers and prevent their burnout?

Caregiver support · Family caregiving · Burnout prevention
+
Supporting family caregivers requires acknowledging their sacrifice and expressing gratitude, encouraging regular respite and breaks, helping them access support resources, being reasonable in expectations and requests, maintaining other relationships beyond caregiver-patient, allowing them to express frustration without guilt, insisting they maintain their own health and wellbeing, providing detailed care information and preferences making their job easier, planning for professional care supplementing family support, and recognising when care demands exceed family capacity—protecting caregivers enables sustainable care whilst preserving relationships.
Read full answer: how do i support family caregivers and prevent their burnout?
06

How do i navigate end-of-life decisions and transitions with degenerative illness?

End-of-life · Hospice · Death preparation
+
End-of-life navigation requires honest prognostic conversations with medical team, clear advance directive documentation about desired care intensity, understanding hospice criteria and benefits, making peace with relationships and unfinished business, completing legacy documentation and final messages, considering where and how you want to die, discussing preferences with family reducing their decision burden, addressing spiritual or existential preparation, planning funeral and memorial preferences, and recognizing when shifting from curative to comfort-focused care—enabling peaceful dignified death aligned with your values.
Read full answer: how do i navigate end-of-life decisions and transitions with degenerative illness?
07

How does Evaheld support comprehensive degenerative illness planning?

Evaheld platform · Degenerative illness tools · Progressive planning
+
Evaheld provides degenerative illness-specific planning frameworks, comprehensive legal document guidance and storage, medical preference and care plan documentation, family communication and coordination tools, financial planning and expense tracking, caregiver support resources and information, timeline-based planning addressing disease progression stages, legacy documentation and final message creation, integration with healthcare providers and professionals, and regular update prompts adapting plan to disease progression—creating comprehensive systematic approach to complex multi-dimensional planning needs.
Read full answer: how does Evaheld support comprehensive degenerative illness planning?
08

What emotional and psychological support do i need after degenerative illness diagnosis?

Mental health · Counseling · Grief
+
Psychological support requires allowing grief for losses whilst maintaining hope for quality life, professional counseling processing diagnosis adjustment, support groups connecting with others facing similar challenges, honest communication with loved ones about feelings and needs, addressing depression and anxiety through appropriate treatment, finding meaning and purpose despite limitation, maintaining identity beyond patient role, spiritual or philosophical exploration about mortality and meaning, self-compassion about difficult emotions, and recognizing that psychological adaptation is ongoing process not one-time achievement—creating emotional foundation for navigating progressive illness journey.
Read full answer: what emotional and psychological support do i need after degenerative illness diagnosis?
09

What benefits does comprehensive degenerative illness planning provide?

Planning benefits · Peace of mind · Family protection
+
Comprehensive planning creates profound peace of mind knowing affairs are organized, preserves autonomy through documented wishes honored when you cannot communicate, dramatically reduces family burden and decision anguish, enables focusing on quality time and relationships rather than crisis management, protects financial security through proper planning, ensures care quality matching your values and preferences, creates meaningful legacy for loved ones, reduces family conflict through clear guidance, and transforms chaotic progressive illness journey into navigable process with roadmap and support—providing control, dignity, and peace throughout difficult trajectory.
Read full answer: what benefits does comprehensive degenerative illness planning provide?
10

Who is Evaheld actually for?

Legacy Planning · Family Vault · Memory Preservation
+
Evaheld is for anyone who wants clarity about their legacy — individuals, families, carers, and adult children planning ahead. It suits every life stage, from young adults organising life admin to older Australians recording stories, care directives and estate documents in one secure, private vault.
Read full answer: who is Evaheld actually for?
11

Who should use a digital legacy vault and when should i start?

digital legacy vault · when to start legacy planning · legacy planning for families
+
Everyone should use a Digital Legacy Vault, regardless of age. The best time to start is now.
Read full answer: who should use a digital legacy vault and when should i start?
12

How do i get started and what should i preserve first?

Getting Started · Legacy Planning · Onboarding Guide
+
Start with one urgent item — a treasured memory, a health wish, or a key document — and let Charli guide you with small prompts. Evaheld turns the first ten minutes into real progress, then helps you expand gradually into a complete, organised Legacy Vault at your own pace.
Read full answer: how do i get started and what should i preserve first?